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I first met Paul Woodward (also known as Morticia) at the Our House Body Positive premises in Circus Street. Paul’s partner was also called Paul, so we called him Kim to avoid confusion. They were always together and came to OHBP most days. It was handy for them as they'd recently moved into a flat nearby on Ashton Rise. We became good friends because Kim was a hair stylist, and I needed a new one as the person who’d been doing my hair had crossed the rainbow bridge. Paul and Kim always came to my flat together. Paul wasn't 100% well and he’d had about eight operations for a collapsed lung at different times. Despite this he continued to chain smoke which really didn't help. The three of us did a Millinery course together after I said I was fed up with the gay community making better hats than me. We also used to go out a lot together as they had a car. They took me on holiday to a farm in Somerset once as a birthday present and lavished me with some beautiful gifts. Paul was not very well on holiday, but he still insisted on doing the cooking despite his poor sight which was deteriorating rapidly. I suggested he took up pottery so he could sense things and learn to feel with his hands better which he seemed to enjoy. There was a time when I was over in Rhodes seeing my daughter which coincided with a cruise they were on. Their ship docked at Mandraki Harbour for the day and I met them to show them around the old city. By this time Paul was using a white stick. As we strolled along with our arms linked, everyone seemed to be staring which made us all feel really uncomfortable, but we still had a memorable day. I heard that Paul crossed the rainbow bridge in 2008. Sadly, I’d lost touch with them as I was in Kenya by then, but I did send Kim a letter of condolence. Words by Avee Isofa Holmes
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Philip’s panel was part of the AIDS Memorial Quilt display in Washington in October 1992, and I went with mum and the UK gang for a week. His panel came up on CNN news later that day picked out from thousands. Philip was from Bootle in Liverpool, and we started going out when I was 17 and he was 21. He was insulting, cheeky and funny, blind in one eye, five foot one with size 3 feet, but his mouth made up for his stature. I am always intrigued by people who take the mick out of me so I was hooked. We moved to London in 1978, and he worked at the post office on the King’s Road. He was diagnosed HIV+ in 1985 and with full blown AIDS in 1987. Australia was our last chance of a holiday together as he was beginning to get weaker. He loved music, especially Philadelphia soul and Helen Reddy. He loved laughing and would tell people their friends had died for a laugh - weeks later they'd bump into them on the tube...ha, he was a monkey. Him and my family got on great and he was my first proper bloke to go out with. We had a beautiful Dr in Hackney called Dr Feder. He tried all kinds to help at a time when hospital staff treated us like the plague. I used to tell people he had cancer when they asked, because it seemed mild in comparison. It all seems another life away, but it's always just under the surface because it was a massive thing for us to go through. I was 24 when he was diagnosed and it took me about five years after Philip died to feel something like me again, but I'm sure he’s fine now in Oz. He's had a quilt panel, a painting and Australia - that's your bloody lot...ha xxx Words by Gary Sollars 'My partner Philip Munro. Died 13.1.89. Aged 34' a painting by Gary Sollars On a hospital bed bathed in an ethereal light lies a man who has just died. Weeping by his side are two women. Another man is kneeling with his arms stretched across the mattress. Two more men, their bodies naked stride away. From the hand of one of them flutters a red ribbon, the symbol of AIDS awareness. The painting earned Gary Sollars the overall prize for outstanding work at the Sussex Open art competition of 1996. It’s a deeply personal work which Gary saw as a final stage to the sorrow he experienced after losing Philip to AIDS after 13 years together. “The bed scene kept coming up in my head,” he said. “I wanted to do something about being gay, and the obvious subject was the loss.” The first stage of Gary’s grieving process was to scatter Philip’s ashes over Ayers Rock in Australia. “We went on holiday to Sydney in 1987, and coming back we had to choose between seeing Disneyland or Ayers Rock. We went to Disneyland - I wanted Philip to have had the experience of being in both places.” Gary went on to make a panel for the UK AIDS Memorial Quilt which depicts Ayers Rock with footsteps leading the way. It was exhibited alongside other local panels during Brighton Lesbian & Gay Pride in 1992. “You don’t realise it, but the bereavement process takes a long time. You’re think you’re OK for a while, and then something triggers it off again.”
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Reflections of an Unsung Hero Reflections of an Unsung Hero was a solo performance created by Robert Pacitti, directed by Colin Schantz and commissioned by Aputheatre (AIDS Positive Underground Theatre Company) to cherish the work of Graham Wilkinson. Playwright John Roman Baker was so impressed by Robert’s performance of ‘Lust’ during his second year at Art School in 1990, that he approached him to create a performance to honour Graham, and gave him full copies of Graham’s diaries to work with. The commission asked for a radical live performance that responded to the content of the diaries, Graham’s Gay Liberation Front and extensive AIDS activism, and his significant lifetime legacy fighting for change. Because Graham had lost his sight, Robert wore an eye mask and travelled around Brighton on the bus to immerse himself in the role. The play was rehearsed at the Sussex AIDS Centre and Helpline in readiness for the 1991 Brighton Festival, but was nearly de-railed when Gavin Henderson, the Brighton Festival director, pulled the play from the programme due to its subject matter and the theatre company name. Lindsey Kemp was one of the festival headliners that year, and when news reached him that the play had been removed from the programme, Robert was asked to meet at his hotel. When Lindsey heard the full story, he gave Robert £500 in cash so that the play could go ahead, and had it reinstated in the festival programme. The play was performed at the Marlborough Theatre on the 26 May 1991.
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Roy Davies was by all accounts a lovely man and a brilliant fundraiser. He lived in a couple of cottages in Kemptown just down the road from his friend David Raven’s guest house. As well as helping to raise cash for Our House Body Positive, he also sat on the committee of the Rainbow Fund which back then raised money for people living with HIV/AIDS through entertainment events. Roy’s many show biz contacts proved invaluable when putting together countless shows. His own fancy dress parties, like his 60th birthday party at the Royal Albion, were also legendary. Roy was a quiet man, and despite being positive he rarely talked about his condition and didn’t use the services on offer. Eventually the virus took its toll, and he became very drawn and simply faded away.
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I met Shaun at a Body Positive Group meeting at the Sussex AIDS Centre and Helpline (SACH) which I’d been extremely privileged to be invited to. We also met sometimes at Open Door where he sometimes went for lunch. Shaun was a quiet person who kept himself to himself most of the time, but he could be quite outspoken if he felt something was wrong. He was helped a great deal by his partner Nick who was a volunteer at SACH and always very smartly dressed. Shaun was a regular at the Bulldog pub but didn’t talk much about his personal life. Words by Avee Tsofa Holmes
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Simon Mckenzie Dwyer was a curious fellow. A pub brawler and a football hooligan. A Plymouth Argyle supporter with a tender soul and ferocious intellect. Raised a Catholic, abused and beaten by Christian brothers, he grew up feeling anger, guilt and shame but found David Bowie and a way out. I first met him when I was 17 and an understudy at Chichester Festival Theatre. I had just bought a red dress and he was stage crew watching the rehearsals. He saw me and said “I’m going to marry that girl in red.” I grew up in a small village in West Sussex, sheltered and naïve. I followed him to a squat in an enormous council estate in Poplar, East London. He started a fanzine in the late 70s called ‘Rapid Eye Movement’ and I was introduced to his friends who were musicians, writers, poets, performance artists and one glorious heroin addicted painter called Nicky Slagg who lived in the underbelly of a derelict Wapping warehouse. I remember stapling the fanzine pages together. The music magazine Sounds picked up on Simon’s interview with Crass who had refused interviews with the mainstream press. Like so many others, Crass co-founder Penny Rimbaud respected Simon and agreed that Sounds could re-print the article. Sounds then employed Simon as a music journalist. Much to my excitement he reported on Adam and the Ants and all the punk bands. He also went on a Belgium tour with The Cure, but his passion was for sub culture and his own philosophies on life and increasingly death. He poured his heartfelt ideas into his own Rapid Eye project and always ahead of the game he began to amass a following, some less savoury than others. Years after his death I found a letter that was postmarked Waco, Texas – a rambling missive from David Koresh. In the late 80s he started to feel unwell, lost weight and developed strange rashes. He took a HIV test in a private hidden clinic in London. The results were ‘unequivocal’ and we knew what that meant. He was officially diagnosed in 1992 and placed in the wonderful care of Dr Martin Fisher. He continued with Rapid Eye and writing for different projects with Genesis P-Orridge. Gen had been a dear friend for many years and felt the loss of Simon very deeply. Derek Jarman and Gilbert and George also supported him when his health began to deteriorate. Simon had several admissions to the rather grim Ward 6 in Hove (now a block of luxury flats – I wonder if the owners know the history). He was pumped full of toxic agents that were well intentioned and supposedly maintaining his CD4 count and reducing the viral load, but they had horrendous side effects. He had one drug that induced psychotic episodes during which he’d ask me to leave the house and hide the knives because he feared he might “butcher the cats.” At this point, for my safety, he was admitted to the amazingly beautiful Sussex Beacon where he decided to stop taking the drugs. He spent the last six months of his life there. The staff there were angels, always loving and kind. Simon used to smoke at least 40 Dunhill International a day and made so many burn holes in his bedding that they had a special rotating set of sheets and duvet covers for him. He fell into a loving, cherished morphine induced slumber. The last time he woke up, he asked me for a fag which I held to his lips. He savoured two drags and then slept gracefully. A few days later he died in my arms, clean and fresh and sweet as a daisy. When the doctor, Jonathan Wastie, came in to certify the death he kissed Simon on the forehead and said “farewell darling.” I said “sail safe dearest with Peter our son who was born sleeping in this world but reaching out to embrace you in the next.” Words by Fiona Dwyer Obituary written by Paul Cecil for The Independent – published 28 October 1997. Simon McKenzie Dwyer, writer and editor: born Salisbury, Rhodesia 28 November 1959; married 1982 Fiona Pritchard (one son deceased); died Brighton, East Sussex 26 September 1997. Simon was an extraordinary young man who established himself as one of the leading commentators and contributors to, the artistic and creative subculture of the last two decades. A writer first and foremost, he focused his work through the magazine he first conceived in 1979 and named Rapid Eye. The youngest of three sons, Dwyer was born in Salisbury, Rhodesia, in 1959 but moved to England a year later, when his family returned, moving around the country before settling in Plymouth, where Dwyer attended, somewhat reluctantly, the local schools. He left Tavistock Comprehensive shortly after his 16th birthday. This was the time of punk which turned many heads away from convention and towards the exploration of the alternative and improbable. It was precisely into this area of burgeoning cultural expansion that Dwyer focused his energies. His understanding of the possibilities awakened by rejecting hierarchical and formal society was already gestating, as was his willingness to embrace the art and performance of transgression. In 1978 he moved to London and began, in the tradition of punk writers, developing his own fanzine, Rapid Eye. The first issue which hit the streets in 1979, included a feature article on anarchist band Crass which was quickly picked up by the music paper Sounds. Dwyer established himself rapidly as a regular contributor to Sounds, interviewing the famous, the soon to be famous, and – as is inevitable in an industry that so vicariously promotes and demotes – the once famous and the never will be famous. This eclectic mix served mainly to reinforce in Dwyer the belief that status is the least relevant concerns and that it is the human level, and creative integrity, that above all marks out the true artist. By 1982 Dwyer had moved to Brighton, and it was in that year that he married Fiona Pritchard. It was soon after this that sadness struck their lives, with the death at birth of their only child, Peter. The world of commercial journalism became ever less attractive to Dwyer and he moved from it to that of interior design, joining Rhodec International. Alongside this work, he continued writing, developing Rapid Eye into an increasingly lavish exemplar of fanzine art. Indeed, the famous “Black” edition which he produced in 1986 has since become a sought-after collector’s item. However Rapid Eye as a concept, despite its plaudits, had for him never reached its potential. Calling in favours from friends and contacts he had made through his earlier work, he set out to produce the ‘zine to end all ‘zines: a coffee table edition, massive in scope, scale and vision. And how those favours rolled in: Andy Warhol provided the frontispiece; William Burroughs sent three pieces of writing, “And His Name was Rover”, “The Johnson Family” and the “Fall of Art”. Kathy Acker, Genesis P-Orridge and Colin Wilson also contributed to the volume, as did Derek Jarman. Alongside this galaxy of stars, Dwyer included, with no less care or column inches, a raft of unknown writers with specialisms ranging from conspiracy theories to foot-binding. Over a year in the making, Rapid Eye 1 (1989) proved to be inspirational, in the words of the New Musical Express “a veritable treasure-trove of mind-activating information. Penetrating, comprehensive, most illuminating.” With the task of the first “real” issue behind him, Dwyer and his wife transported their life to America. They were there to develop Rhodec’s North American presence, but inevitably spent the best part of their year travelling across country. It was this, certainly, that provided the inspiration for Dwyer’s greatest exploration of his journalistic skill, a text of 100,00 words, “The Plague Yard: Altered States of America”. It was on their return to England in 1991 that Dwyer learned that he was HIV positive. While coming to terms with the diagnosis he completed “Plague Yard” and concluded a commercial deal with Creation Books for Rapid Eye. The idea of publishing “Plague Yard” as a book was floated. Those who read the text found it astonishing: the art of the travel writer re-configured into a plea for cultural freedom, with the punk aesthetic not only intact, but validated as never before. Focusing as much on low art as high, the piece shows Dwyer to be much at home with the disposed idealist as with the art-elite glitterati. But Dwyer for all the praise heaped on him, remained true to the spirit that had long driven him, and declined the offers. “Plague Yard” was not to be used to announce his elevation in the literary field, instead it was to exist, and stand or fall on its merits, alongside many other pieces, simply as a contribution to Rapid Eye 2. By 1993 the debilitating effects of HIV were becoming an unavoidable presence in his life. Minor ailments mounted up, fatigue set in, and work began on the third and final volume of Rapid Eye. The centrepiece of the volume is a startling piece, by Dwyer himself, on the art of Gilbert and George who offered the use of their painting “We” as the cover. Rapid Eye 3 was launched in London in 1994.
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I met Stephen in a Kemp Town gym, and we became better acquainted in the jacuzzi. His partner was Omar, known to his friends as O. They became good friends of mine, and their large flat on Preston Park was always open to me and other friends. They both had a good eye for interior design and enjoyed a comfortable life. Stephen and I used to go swimming regularly at the Eastbourne leisure centre, stopping off at my house near Lewes on the way back. Somehow, I lost track of Stephen and O for a couple of years, but we reforged our friendships, stronger than ever, after we all were living with HIV. They separated at the start of the 1990’s, and Stephen died from Pneumocystis Pneumonia (PCP) in Ward 6 of Hove General Hospital in 1994.
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Sussex AIDS Centre “We held the first Brighton and Hove public meeting on AIDS in 1984 at offices in Lansdowne Place, Hove. Graham Wilkinson and I split the small cost of hiring the room and invited someone from the recently formed THT to come along and explain what they were doing in London. Both Graham and I had joined THTs small Social Work group which met at their original tiny offices in London – at that time only consisting of a couple of rooms. So, it was at this first public meeting that a handful of us volunteered to set up the Sussex AIDS Helpline. We knew the person who at the time managed the Well-Women Clinic above a shop on the corner of Western Road and Waterloo Street in Hove. They very kindly agreed to let us use their offices in the evening when they were closed and allowed us to use a telephone line for free. Graham and I both worked together as Social Workers in the Hanover Team based opposite St Peters Church, and we managed to get permission to use our offices in the evening for training and support groups. As professional social workers we were able to put together a training programme for the early volunteers to help handle phone calls. Graham or I would either take the calls ourselves, or be there as support for the other volunteers. For the first 2 years Sussex AIDS Helpline got no official funding. We managed to get by with volunteer time and effort, meeting in each other’s homes, raising awareness in pubs and clubs, and by borrowing facilities and resources from the Well Women's Clinic and Social Services Hanover Team. A couple of years later we became the Sussex AIDS Centre and Helpline.” Clive Stevens
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Sussex Lancers Open Door appeal 1990. Father Marcus Rigg’s partner Keith Simmans was a member of the Sussex Lancers, a gay men’s motorcycle club. The appeal is dated 1990. The photograph of 35 Camelford Street , the former location of Open Door, was taken by Harry Hillery in 2021.
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A collection of poetry and prose relating to HIV/AIDS. Written by the Xpress Yourself Group, a creative writing project that was based at the Open Door service in 35 Camelford Street, Kemptown, Brighton.
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Tall Ken in his own words - 1993 “I was diagnosed by a doctor who did the test without telling me. It was about 8 or 9 years back. I’ve lost touch with exactly when. I know it was June but that’s all I can remember. I had to decide whether or not to tell my mum and dad. I felt that in the end it would be more of a shock if anything were to happen to me and they found out that way. So, I did tell them. My mum had guessed something was wrong. She said, “you’ve got it haven’t you?” and the next thing I heard was the phone smashing against the wall, and her screaming down the phone “He’s got it! He’s got it!” Ever since then I’ve had a lot of support from my family. We were told not to talk about it because of the way the press was handling it then, but I decided to be open about it and tell everyone right from the start. I wasn’t rejected by anyone, so I was lucky. I do get bouts of depression now & again, but instead of letting AIDS and HIV suffocate me, I suffocate it. Most people who were diagnosed at the same time as me are gone now. When Open Door started, there were about ten of us. I think I’m the only one of them left now. It does make you think that the list is getting shorter and that your name is getting nearer the top. When I was diagnosed all those years ago, a group of us just used to meet in someone’s room. I’ve met a lot of people that I wouldn’t have met otherwise if life had been…normal. When I had pneumonia and I was bored in hospital someone suggested I do some needlework. I thought about it and decided to embroider a cloth with people’s name on it. That was about four years ago. Now there are 120 or 130 names on it, all people who’ve passed through Open Door at some time. I was classed as a professional funeral goer because I went to nearly all of them, but it’s my way of saying goodbye to friends. I did get to the stage where I thought I couldn’t cry anymore, but then you find that some are really hard. But some have been spiritually uplifting, because nowadays not everyone’s wearing black., quite often everyone wears bright colours. At one of them I went to, we all let off coloured balloons drifting off to heaven. Sometimes I get shaky when I go to funerals, like one last year. I went to someone’s funeral who was called Ken, and it kept going through my mind that it was like my own funeral. It was a strange experience. Sometimes I’m at a funeral and I think back to other people I’ve known…perhaps I hadn’t been able to let go at their funeral so I do at someone else’s. Most of them are younger than me, and often I feel guilty; why am I still going when they have gone? I’ve been told not to think that but I still do. There were three in one day once. It seems to go in cycles. That does get you down a bit. Over the years I’ve been beaten up four times. Last night I was followed home by a group of men who were singing to the tune of Rod Stewart’s Sailing, “You are dying, you are dying, you are dying, but we don’t care.” I think I’ll write to the Argus about it.”
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Ken was a good friend who I called the gentle giant. He was very gifted and loved gardening. He made a small water fountain for his balcony and created a flower garden around the summer house at The Sussex Beacon when it first opened. He also unveiled the first AIDS Memorial in 1996 which can still be seen at the base of a silver birch tree adjacent to the entrance doors of the Brighthelm Centre. His hands were deformed by the Arthritis he'd had for many years. When he requested an operation to straighten them, he was shockingly told that it wasn't worthwhile because of his AIDS diagnosis which hurt him deeply. A few years later he contributed an article about himself titled ‘I’m Still Here’ which was on the front page of the Sussex Beacon newsletter. He was always very out about his status even in those days when so much stigma was around, and he created his own support. One late afternoon I was ‘kidnapped’ by Ken and six others when buying a tin of Whiskas. Open Door had been given eight tickets for an Elton John concert at Earls Court. The boyz picked me up and carried me to a waiting Bedford minibus and off we went. I arrived bursting for the loo, but WOW, what a night it was. We had fantastic seats with wheelchair access. I still miss Ken because we had so many good times together. I was completely gutted when he crossed the Rainbow Bridge.
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I met Terry and his partner at the founding meeting of Our House Body Positive in 1991. Terry was a small person with a large personality, determination and a strong will. A heavy smoker, he was in his early thirties at the time and had been HIV positive for a few years. A good cook, he helped with Body Positive lunches, especially once we had use of a social services day centre on Sundays and access to a commercial kitchen. Terry was a strong debater in group discussions and could put forward his views assertively. These powerful views did not help him to find consensus in group discussions and after a few years he withdrew from political activity. Terry became a good friend and sex buddy, and his strong personality was reflected in a strong sexual energy. This was a time when positive people often chose other positive people to have sex with - sero selection. I stayed with Terry on several occasions after I moved abroad and we stayed good friends for a long time. When he died (around 2016), he was staying at the Sussex Beacon. I regret that I kept a certain distance and could not bring myself to say goodbye even though I was aware. This probably was to protect my own emotional well-being. Over the years his health followed the rollercoaster pattern familiar to most people living with HIV at that time. By the turn of the century, he was single and living in a large basement flat near the 7 dials which for many years was remarkable for its colourful and eye-catching display of plants and flowers in a small front garden and window boxes. Around this time, he also ran his own flower business in town. Words by A N
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The AIDS Memorial Quilt 'Brighton Remembers' Exhibition at the Corn Exchange 1993
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The Brighton AIDS Memorial Exhibition was displayed at the Dorset Gardens Methodist Church and the Ledward Centre on Jubilee Street between the 24th November and the 4th December 2021 'Love is life that lasts forever'














